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UCP APPLAUDS NATIONAL FORUM ON DISABILITY ISSUES

FOR IMMEDIATE RELEASE

CONTACT:
Kaelan Richards: 202-973-7175,

UCP APPLAUDS NATIONAL FORUM ON DISABILITY ISSUES

 

Obama and Romney campaigns send representatives to speak to Americans living with disabilities


Washington, DC (September 28, 2012) – More than 500 people attended the only national event for the presidential campaigns on disability issues with more than 1,000 people watching online, reported United Cerebral Palsy (UCP), one of the more than 80 sponsors of the National Forum on Disability Issues, hosted in Columbus, OH today.

The non-partisan forum featured President Barack Obama’s campaign surrogate Edward M. Kennedy, Jr., a disability rights advocate and son of the late Senator Edward M. Kennedy, and former Governor Mitt Romney’s campaign surrogate U.S. Representative Cathy McMorris Rodgers (R-WA). Also participating in the forum on behalf of U.S. Senator Sherrod Brown (D-OH) was Ohio State Representative Nancy Garland (D-New Albany), and Senator Brown’s opponent, Ohio State Treasurer Josh Mandel.

Each participant presented the policy positions of the respective campaigns and responded to questions posed by the moderator, Frank Sesno, director of the School of Media and Public Affairs at the George Washington University. Many of the questions were submitted by the disability community, and focused on employment, health care, long-term care, education, and housing issues.  

“United Cerebral Palsy is very excited to be a part of the National Forum on Disability Issues, which has helped engage the presidential campaigns on issues that are critical to the disability community. With more than 57 million Americans living with disabilities today, people with disabilities are not a ‘minority’ constituency but a real and powerful voice in the electoral process,” said Stephen Bennett, President & CEO of UCP. “While we are disappointed that President Obama and Governor Romney were not able to participate, we applaud all of those who contributed to today’s success and look forward to continuing to work together in advocating for the public policies that ensure fair and full citizenship for people with disabilities.” 

# # #

About United Cerebral Palsy
United Cerebral Palsy (UCP) educates, advocates and provides support services through an affiliate network to ensure a life without limits for people with a spectrum of disabilities. Together with nearly 100 affiliates, UCP has a mission to advance the independence, productivity and full citizenship of people with disabilities by supporting more than 176,000 children and adults every day—one person at a time, one family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities—impacting the lives of millions living with disabilities. For more than 60 years, UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society. Together, with parents and caregivers, UCP will continue to push for the social, legal and technological changes that increase accessibility and independence, allowing people with disabilities to dream their own dreams, for the next 60 years, and beyond. For more information, please visit www.ucp.org.


UNITED CEREBRAL PALSY CELEBRATES FIRST WORLD CP DAY, LAUNCHES GLOBAL FITNESS CHALLENGE

FOR IMMEDIATE RELEASE

CONTACT:
Kaelan Richards: 202-973-7175, Alicia Kubert Smith: 202-973-7168,   

UNITED CEREBRAL PALSY CELEBRATES FIRST WORLD CP DAY, LAUNCHES GLOBAL FITNESS CHALLENGE


World CP Challenge to raise awareness, support for people living with CP

Washington, DC (September 4, 2012) – United Cerebral Palsy (UCP) celebrates the first annual World Cerebral Palsy Day today with the launch of the World Cerebral Palsy Challenge, an international awareness and fundraising campaign designed to provide critical funds in support of people living with cerebral palsy.

World CP Day marks the beginning of a month dedicated to making the world better for individuals with cerebral palsy. Through the “Change my World in 1 Minute” campaign, individuals are encouraged to submit videos, texts or audio files of approximately one minute with ideas about how to change the lives of people with cerebral palsy through improved mobility, independence, accessibility, communication or social connection. For the entire month of September, any one can log on and vote at: worldcpday.org for the ideas they think would make a real difference in people’s lives. An international World Cerebral Palsy Day panel will review the most popular submissions and award grants to researchers, innovators and inventors to turn selected ideas into reality.

“We are very excited to be celebrating the first World Cerebral Palsy Day, a day which will help raise awareness and support for people living with CP, as well as make a real difference in their lives. Through the “Change My World in 1 Minute” campaign, innovative ideas and products will be realized and used to improve the lives of millions of people around the world,” said Stephen Bennett, President & CEO of UCP.

Close to 50 nations across the globe are planning awareness activities for the day, a remarkable number for this inaugural years. For a complete list of international organizations participating in the day, go to worldcpday.com.

World CP Day also marks the launch of the World CP Challenge, a month-long campaign that encourages people to get active and support individuals living with cerebral palsy. Throughout September, more than 1,000 teams comprising close to 5,000 participants and organizations around the world will compete as teams to exercise and fundraise. Each team and participant will track their daily steps with a pedometer; however, they are not limited to just walking to participate. The Challenge website offer participants a list of 40 activities —including activities for people living with disabilities— that also can count toward their daily step total. As the team’s steps are entered, their progress will be tracked as they climb their own virtual mountain representing the seven tallest peaks on the globe. The funds raised will support vital services and groundbreaking research to help people with CP.

“The World CP Challenge is a great way for people around the world to step-up, get involved, and support the approximately 57 million Americans living with cerebral palsy and other disabilities, as well as the estimated 650 million individuals worldwide. By committing to just one month of activities, anyone can help to make a lasting difference for those living with and impacted by disabilities,” Bennett said. “I challenge everyone to take part and walk, step, roll or run their way to supporting people with cerebral palsy around the world.”

Cerebral palsy is a physical disability caused by an injury to the developing brain, which usually occurs before birth. It affects movement and is a lifelong condition, but its impact varies from person to person. United Cerebral Palsy works with its nearly 100 affiliates throughout the country to educate, advocate and provide services for people living with a spectrum of disabilities, such as housing, physical therapy, assistive technology training, early intervention services, individual and family support, social and recreational programs, community living, and employment assistance.   

# # # 

About United Cerebral Palsy
United Cerebral Palsy (UCP) educates, advocates and provides support services through an affiliate network to ensure a life without limits for people with a spectrum of disabilities. Together with nearly 100 affiliates, UCP has a mission to advance the independence, productivity and full citizenship of people with disabilities by supporting more than 176,000 children and adults every day—one person at a time, one family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities—impacting the lives of millions living with disabilities. For more than 60 years, UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society. Together, with parents and caregivers, UCP will continue to push for the social, legal and technological changes that increase accessibility and independence, allowing people with disabilities to dream their own dreams, for the next 60 years, and beyond. For more information, please visit www.ucp.org.


LEADING CHILDREN’S HOSPITAL JOINS UCP AS FIRST AFFILIATE OF ITS KIND IN THE NATION

FOR IMMEDIATE RELEASE

CONTACTS:
Michael Hill, Senior Vice President of External Affairs
United Cerebral Palsy
202-973-7144, 202-431-3513 (cell),

Patty Dunn, Public Relations Manager
Gillette Children’s Specialty Healthcare
651-229-1753, 651-245-8489 (cell), 

 

LEADING CHILDREN’S HOSPITAL JOINS UCP AS FIRST AFFILIATE OF ITS KIND IN THE NATION


Gillette Children’s Specialty Healthcare expands network in Minnesota, beyond

Washington, DC -  (August 29, 2012) – Gillette Children’s Specialty Healthcare (Gillette) joins United Cerebral Palsy (UCP) as its newest affiliate and the first children’s hospital to join the UCP network in the organization’s 64-year history, the organizations announced today. UCP’s Board of Trustees voted unanimously to welcome Gillette as UCP of Minnesota during a special meeting on Tuesday, August 14, 2012. This makes UCP and its affiliate network nearly a $1 billion enterprise devoted to educating, advocating for and providing support services to people who have a spectrum of disabilities.

Gillette is internationally recognized for its work in treating children who have disabilities and complex medical conditions. Its Center for Cerebral Palsy is world renowned for its medical treatment and rehabilitation services dedicated to reducing the effects of cerebral palsy through an interdisciplinary team. The hospital was cited by the 2012 US News & World Report as one of the country’s best children’s hospitals in the areas of orthopedics and neurology/neurosurgery. Gillette serves approximately 4,000 children each year with CP at its main campus in St. Paul, Minnesota and at clinics throughout the state. Click here to download a fact sheet with additional information about Gillette.

“We are thrilled to welcome Gillette to the UCP family,” said Stephen Bennett, president & chief executive officer of UCP. “The partnership with Gillette marks a new approach by UCP to expand our network in new and exciting ways. Gillette’s mission mirrors that of UCP, with a broad commitment to people with a spectrum of disabilities. Their reach, reputation and dedicated and accomplished team adds vast new resources to the UCP network, and we are excited for a strong partnership in the years to come.”

”As a national leader in specialty health care, Gillette is always looking to build partnerships with organizations who provide support to children who have disabilities and their families,” said Margaret Perryman, president and CEO of Gillette. “By becoming an affiliate of UCP, we will now be able to provide our patients with even more valuable resources.”

UCP is comprised of close to 90 affiliates throughout the globe that provide services such as housing, physical therapy, assistive technology training, early intervention services, individual and family support, social and recreational programs, community living, state and local referrals, employment, employment assistance and advocacy.  Gillette joins UCP as the first hospital center and points to UCP’s efforts to expand its reach through creative partnerships with organizations that provide excellence in service to people with disabilities.

“This is an important day for UCP,” Bennett said. “Just as parents in the 1940s founded UCP as a response to wanting better for their children, UCP is excited to announce a partnership that expands its reach to help even more people under the UCP banner.”

###

About United Cerebral Palsy
United Cerebral Palsy (UCP) educates, advocates and provides support services to ensure a life without limits for people with a spectrum of disabilities. Together with nearly 100 affiliates, UCP has a mission to advance the independence, productivity and full citizenship of people with disabilities by supporting more than 176,000 children and adults every day—one person at a time, one family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities—impacting the lives of millions living with disabilities. For more than 60 years, UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society. Together, with parents and caregivers, UCP will continue to push for the social, legal and technological changes that increase accessibility and independence, allowing people with disabilities to dream their own dreams, for the next 60 years, and beyond. For more information, please visit www.ucp.org.

About Gillette Children’s Specialty Healthcare
Gillette is an independent, not-for-profit hospital and clinics, that is internationally recognized for its work in the diagnosis and treatment of children and young adults who have disabilities or complex medical needs. As, the nation’s first hospital devoted to the treatment of children with disabilities, Gillette’s mission is to help children, adults and their families improve their health, achieve greater well-being, and enjoy life. In a nationwide survey by U.S. News Media Group this year, Gillette ranked 12th in pediatric orthopedics and 39th in pediatric neurology/neurosurgery, an increase over our 2011 national rankings.


UCP CELEBRATES 22ND ADA ANNIVERSARY

FOR IMMEDIATE RELEASE

CONTACT:
Kaelan Richards: 202-973-7175,


UCP CELEBRATES 22ND ADA ANNIVERSARY

Renews call for progress for Americans living with disabilities

Washington, DC (July 26, 2012) – United Cerebral Palsy (UCP) issued the following statement today in recognition of the 22nd anniversary of the signing of the Americans with Disabilities Act (ADA), which ensured that people living with disabilities were afforded the same access rights as every other American.

“Today we celebrate the anniversary of a great moment in our nation’s history, the signing of the Americans with Disabilities Act, by continuing to advocate and actively push for civil rights protections and public policies that ensure fair and full citizenship for people with disabilities. The ADA is a promise that America has made to its citizens: that every man, woman and child is an equal and valued citizen,” said Stephen Bennett, UCP President & CEO. “But we still have a long way to go, particularly in areas such as health care, education and employment opportunities, to ensure that Americans living with disabilities have the support, access and tools they need to live their lives to the fullest. So while today is a day of celebration for the disability community, it should also serve as a call to action for us all.”

United Cerebral Palsy works with its nearly 100 affiliates throughout the country to provide services to people living with disabilities every day. Additionally, UCP is working to develop and support policies that will expand access to health care and education, as well as employment opportunities and technology.

Team up with UCP as it advocates for life without limits for all by joining the conversation on Facebook and Twitter, this week, to add your voice to the movement. 

# # #

About United Cerebral Palsy
United Cerebral Palsy (UCP) educates, advocates and provides support services through an affiliate network to ensure a life without limits for people with a spectrum of disabilities. Together with nearly 100 affiliates, UCP has a mission to advance the independence, productivity and full citizenship of people with disabilities by supporting more than 176,000 children and adults every day—one person at a time, one family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities—impacting the lives of millions living with disabilities. For more than 60 years, UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society. Together, with parents and caregivers, UCP will continue to push for the social, legal and technological changes that increase accessibility and independence, allowing people with disabilities to dream their own dreams, for the next 60 years, and beyond. For more information, please visit www.ucp.org. 


UCP APPLAUDS NATIONAL GOVERNORS ASSOCIATION FOCUS ON EMPLOYING PEOPLE LIVING WITH DISABILITIES


FOR IMMEDIATE RELEASE
 
CONTACT: 
Kaelan Richards: 202-973-7175, krichards@ucp.org
 

New NGA Chair announced year-long initiative at annual meeting


Washington, DC (July 16, 2012) – United Cerebral Palsy (UCP) issued the following response to the National Governors Association’s announcement of new Chair Delaware Governor Jack Markell’s initiative “A Better Bottom Line: Employing People with Disabilities.”

According to the NGA’s announcement, the initiative will aim to increase employment among individuals with disabilities and focus specifically on the intersection of government, businesses and individuals seeking gainful employment. The initiative will work to develop a “blueprint” for states and businesses to help both raise awareness and outline the best policies to increase employment of people living with disabilities. Business and Congressional leaders will collaborate on this initiative and help to determine best practices and policies.

United Cerebral Palsy provides comprehensive employment-related resources and information through its nearly 100 affiliates across the country, which support employment programs, assistance to job seekers with disabilities, and work with employers to improve the recruitment and retention of persons with disabilities in the workforce.

“United Cerebral Palsy is thrilled that the National Governors Association has chosen to highlight an issue that is so critical to Americans living with disabilities. Employment is a way for these individuals to be integrated in their communities and live their lives to the fullest while providing the business community with a workforce that is eager to participate, and yet only has a 20 percent employment rate,” said Stephen Bennett, President & CEO of United Cerebral Palsy. “By bringing together business and government, Governor Markell will be able to develop a blueprint for employment that both serves and benefits all involved. We look forward to this initiative’s work and its tremendous potential for positive change.”

# # #


UCP Celebrates Health Care Law Decision

FOR IMMEDIATE RELEASE
 
CONTACT: 
Kaelan Richards: 202-973-7175, krichards@ucp.org
 

UCP CELEBRATES HEALTH CARE LAW DECISION

Leading disability organization praises Supreme Court decision and implications for people living with disabilities

 
Washington, DC (June 28, 2012) – United Cerebral Palsy (UCP) responded to the Supreme Court of the United States’ ruling on the Patient Protection and Affordable Care Act.
 

The Supreme Court’s ruling today affirms that the Affordable Care Act is the law of the land, and will ensure that Americans with pre-existing conditions will have access to the care they need. For individuals living with disabilities, it provides many critical benefits, most notably removing annual and lifetime caps on insurance coverage and expanding minimum benefits coverage to include more services and supports. The decision also maintains the Affordable Care Act’s expansion of Medicaid, enabling more Americans to have access to health care services, including individuals who need long-term care services. 

“The Affordable Care Act has already made a significant difference in the lives of millions of Americans, including those living with disabilities. Today’s ruling is an affirmation that all Americans, and especially those living with disabilities, should have access to the care that they need. This decision means that individuals cannot be discriminated against because of a pre-existing condition— and for the disability community, affirms the definition of equality as set forth in the Americans with Disabilities Act,” said Stephen Bennett, UCP President & CEO. “Today’s decision is a clear victory for Americans living with disabilities. UCP strongly supports the Affordable Care Act and will keep working to ensure its implementation eliminates disparities and guarantees equality for all Americans.”

# # #

About United Cerebral Palsy
United Cerebral Palsy (UCP) educates, advocates and provides support services through an affiliate network to ensure a life without limits for people with a spectrum of disabilities. Together with nearly 100 affiliates, UCP has a mission to advance the independence, productivity and full citizenship of people with disabilities by supporting more than 176,000 children and adults every day—one person at a time, one family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities—impacting the lives of millions living with disabilities. For more than 60 years, UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society. Together, with parents and caregivers, UCP will continue to push for the social, legal and technological changes that increase accessibility and independence, allowing people with disabilities to dream their own dreams, for the next 60 years, and beyond. For more information, please visit www.ucp.org.


UCP WELCOMES NEW POLITICAL STRATEGIST AND ADVOCATE

FOR IMMEDIATE RELEASE

CONTACT:
Kaelan Richards: 202-973-7175,


UCP WELCOMES NEW POLITICAL STRATEGIST AND ADVOCATE

Swenson assumes role as Director, Political Leadership and Strategy 


Washington, DC (June 4, 2012) – United Cerebral Palsy (UCP), an international service provider and advocate for children and adults with a spectrum of disabilities, has appointed Will Swenson as Director, Political Leadership and Strategy, effective May 29, 2012. Swenson will report to Connie Garner, Executive Vice President of Public Policy, and Stephen Bennett, President and CEO of UCP.

Swenson joins UCP after six years in the office of New York City Mayor Michael R. Bloomberg, where he played a key role in Mayors Against Illegal Guns, a bipartisan coalition of more than 650 mayors across the country dedicated to keeping guns out of the hands of criminals. Working with mayors, law enforcement, gun violence survivors and family members, the coalition has built a strong and effective new grassroots force in the gun violence prevention movement. A graduate of the University of Chicago and the London School of Economics, Swenson brings considerable experience and insight to UCP and its growing public policy team.

“I am very pleased to welcome Will to United Cerebral Palsy and I look forward to working with him to further develop our public policy and strategic initiatives,” said Stephen Bennett, President and CEO of UCP. “Will’s expertise as a grassroots organizer will help to strengthen UCP’s voice and role as a national advocate for people living with disabilities. His work in developing Mayor Bloomberg’s coalition into a national force for change was outstanding, and we are excited for Will to apply his talents here at UCP.”

Swenson will work closely with UCP’s public policy team to help build consensus and momentum among policymakers, advocates and the disability community to achieve full citizenship for Americans living with disabilities.

“It is my pleasure to welcome Will Swenson to UCP. He is a great addition to our team and will help to strengthen our efforts to ensure that people living with disabilities have a voice in the critical public policy decisions that shape their lives,” said Connie Garner, Executive Vice President of Public Policy. “Will's expertise and experience will help to move UCP forward in its mission to help make this country a place where public policy always reflects the priorities of people living with disabilities.”

“UCP is recognized as a leader in the disability community, and I am proud to be joining such a strong and dedicated team,” said Swenson. “UCP, together with their network of affiliates and partners, has helped shape the policies that make a difference in the lives of people living with disabilities and their families for over sixty years, and I look forward to continuing UCP’s work in new and innovative ways.”

# # #

About United Cerebral Palsy
United Cerebral Palsy (UCP) educates, advocates and provides support services through an affiliate network to ensure a life without limits for people with a spectrum of disabilities. Together with nearly 100 affiliates, UCP has a mission to advance the independence, productivity and full citizenship of people with disabilities by supporting more than 176,000 children and adults every day—one person at a time, one family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities—impacting the lives of millions living with disabilities. For more than 60 years, UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society. Together, with parents and caregivers, UCP will continue to push for the social, legal and technological changes that increase accessibility and independence, allowing people with disabilities to dream their own dreams, for the next 60 years, and beyond. For more information, please visit www.ucp.org.


LEADING DISABILITY GROUPS USE NEW MEDICAID REPORT FINDINGS & RESROURCES AS GUIDE IN ADVOCACY FOR PROGRESS, AGAINST FAILURES IN STATES SERVING AMERICANS WITH ID/DD

FOR IMMEDIATE RELEASE

CONTACT: 
Kaelan Richards, UCP: 202-973-7175,
Lara Schwartz, AAPD: 202-521-4309,

LEADING DISABILITY GROUPS USE NEW MEDICAID REPORT FINDINGS & RESOURCES AS GUIDE IN ADVOCACY FOR PROGRESS, AGAINST FAILURES IN STATES SERVING AMERICANS WITH ID/DD

The Case for Inclusion should be used a tool to determine how to build state support and service systems that work for Americans with intellectual and development disabilities                                                                                            

Washington, DC (May 23, 2012) – While progress has been made and there is more quality assurance of services provided, some states are failing to adequately serve Americans with intellectual and developmental disabilities (ID/DD), according to The Case for Inclusion 2012, a new Medicaid report released today. United Cerebral Palsy (UCP) and the American Association of People with Disabilities (AAPD) are calling on advocates to use The Case for Inclusion as a tool to determine how to build state support and service systems that work for people. The findings for 2012 reveal that:

  1. While progress has been made, there is room for improvement: 36 states can now show that 80% of the individuals with ID/DD in their states are served in the community;  
     
  2. States are becoming more involved in ensuring the quality of the services they provide: 29 states have established a comprehensive quality assurance program to measure the outcomes of the community services they deliver;  
     
  3. But there is still more to do, particularly in providing services: waiting lists for critical community services continue to climb with more than a quarter of a million, or 268,000, people with ID/DD.


The 2012 report tracks the progress of community living standards, and it shows that the states with the best services and supports for Americans living with disabilities are Arizona, Michigan and California. The lowest performing states are Arkansas, Texas and Mississippi, which have remained at the bottom of the rankings since The Case for Inclusion was first published in 2006.  

While many states appear to be financially stable, the coming intersection of an aging population, people living with disabilities, and limited financial resources, will have a significant impact on the country’s entitlement programs. 

The report examines data and outcomes for all 50 states and the District of Columbia (DC), ranking each on a set of key indicators, including how people with disabilities live and participate in their communities, if they are satisfied with their lives, and how easily the services and supports they need are accessed. By taking these factors into account, the findings develop a comprehensive analysis of each state’s progress or failures in providing critical services to individuals living with disabilities.

Since 2006, these rankings enable families, advocates, the media and policymakers to fully understand each state’s progress or lack of improvement, and help to protect successful efforts against unwise funding cuts, as well as guide future reforms to promote inclusion and enhance the quality of life for these, and ultimately all, Americans.

“Each year, UCP publishes The Case for Inclusion as part of its continuing efforts to advocate for civil rights protections and public policies that provide support for individuals living with disabilities, ensuring fair and full citizenship for all Americans,” said UCP President & CEO, Stephen Bennett. “The Case for Inclusion clearly identifies the states that are successful in providing the supports and services that people living with disabilities need, as well as states that are struggling. I urge all states and advocates to utilize The Case for Inclusion as a tool to strengthen their efforts, and to advance the independence, productivity and full citizenship of people with disabilities.”

“It is critical that states honor their obligations to people with disabilities by providing comprehensive and high-quality services through their Medicaid programs. That is why people with disabilities and our allies are fighting to preserve and improve Medicaid at the state and federal levels. The Case for Inclusion makes clear that some states are falling short and provides a roadmap for advocacy. AAPD encourages our community, members, and supporters to use this tool in our continued efforts to preserve the vital services and supports that enable eight million people with disabilities to live the lives we deserve,” said AAPD President and CEO Mark Perriello. 

Online features, reports and data:
The 2012 report and data from all previous reports is available on UCP’s website using a robust new web module and design at ucp.org/public-policy/the-case-for-inclusion. Users can:

  • Compare state & national data
  • View state scorecards 
  • Interact with the ranking map 
  • See highlights of the 2012 report, top and bottom 10 states, most improved states and those with biggest drops, and  facts about the best performing states
  • Advocate for areas needing improvement in states, and promote achievements that maintain high quality outcomes, like eliminating waiting lists and closing large institutions
  • Download the full 2012 report and previous reports 


Users can pull individual state outcomes and measures, track each state’s performance over time, and compare states among one another and to the US average. The Case for Inclusion data, tables and graphs are exportable and printable as needed for personal and professional use. 

For further detail about the report itself, there will be a press briefing at 1:00 p.m. ET (10:00 a.m. PT). Author Tarren Bragdon will provide insight into the rankings and data, which advocacy groups and individuals can use to raise awareness for key outcomes for people with disabilities.

  • Toll-free: 1-888-450-5996
  • Participant passcode: 786597


# # #

About United Cerebral Palsy
United Cerebral Palsy (UCP) educates, advocates and provides support services through an affiliate network to ensure a life without limits for people with a spectrum of disabilities. Together with nearly 100 affiliates, UCP has a mission to advance the independence, productivity and full citizenship of people disabilities by supporting more than 176,000 children and adults every day—one person at a time, one family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities—impacting the lives of millions living with disabilities. For more than 60 years, UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society. Together, with parents and caregivers, UCP will continue to push for the social, legal and technological changes that increase accessibility and independence, allowing people with disabilities to dream their own dreams, for the next 60 years, and beyond. For more information, please visit www.ucp.org.


About the American Association of People with Disabilities (AAPD)
The American Association of People with Disabilities (AAPD), the country's largest cross-disability membership association, organizes the disability community to be a powerful force for change – politically, economically, and socially. AAPD was founded in 1995 to help unite the diverse community of people with disabilities, including their family, friends and supporters, and to be a national voice for change in implementing the goals of the Americans with Disabilities Act (ADA). To learn more, visit the AAPD Web site: www.aapd.com.


UCP’S NEW REPORT SHOWS PROGRESS, FAILURES OF STATES SERVING AMERICANS WITH DISABILITIES

FOR IMMEDIATE RELEASE        

CONTACT: 
Kaelan Richards: 202-973-7175,

UCP’S NEW REPORT SHOWS PROGRESS, FAILURES OF STATES SERVING AMERICANS WITH DISABILITIES

 

The Case for Inclusion analyzes and ranks states on services for Americans with intellectual and development disabilities                                                                                             

Washington, DC (May 23, 2012) – United Cerebral Palsy (UCP) released The Case for Inclusion today, an annual report that tracks the progress of community living standards for Americans living with intellectual and developmental disabilities (ID/DD), and there will be a press briefing at 1:00 p.m. ET (10:00 a.m. PT). Author Tarren Bragdon will provide insight into the rankings and data, which advocacy groups and individuals can use to raise awareness for key outcomes for people with disabilities.

  • Toll-free: 1-888-450-5996
  • Participant passcode: 786597


The findings for 2012 reveal that:

  1. While progress has been made, there is room for improvement: 36 states can now show that 80% of the individuals with ID/DD in their states are served in the community;
     
  2. States are becoming more involved in ensuring the quality of the services they provide: 29 states have established a comprehensive quality assurance program to measure the outcomes of the community services they deliver; and
     
  3. But there is still more to do, particularly in providing services: waiting lists for critical community services continue to climb with more than a quarter of a million, (268,000), people with ID/DD.

The 2012 report shows that the states with the best services and supports for Americans living with disabilities are Arizona, Michigan and California. The lowest performing states are Arkansas, Texas and Mississippi, which have remained at the bottom of the rankings since The Case for Inclusion was first published in 2006.

While many states appear to be financially stable, the coming intersection of an aging population, people living with disabilities, and limited financial resources will have a significant impact on the country.

The report examines data and outcomes for all 50 states and the District of Columbia (DC), ranking each on a set of key indicators, including how people with disabilities live and participate in their communities, if they are satisfied with their lives, and how easily the services and supports they need are accessed. By taking these factors into account, UCP is able to develop a comprehensive analysis of each state’s progress or failures in providing critical services to individuals living with disabilities.

Since 2006, these rankings enable families, advocates, the media and policymakers to fully understand each state’s progress or lack of improvement, and help to protect successful efforts against unwise funding cuts, as well as guide future reforms to promote inclusion and enhance the quality of life for these, and ultimately all, Americans.

“Each year, UCP publishes The Case for Inclusion as part of its continuing efforts to advocate for civil rights protections and public policies that provide support for individuals living with disabilities, ensuring fair and full citizenship for all Americans,” said UCP President & CEO, Stephen Bennett. “The Case for Inclusion clearly identifies the states that are successful in providing the supports and services that people living with disabilities need, as well as states that are struggling. I urge all states and advocates to utilize The Case for Inclusion as a tool to strengthen their efforts, and to advance the independence, productivity and full citizenship of people with disabilities.”

New online features, reports and data:
The 2012 report, in addition to data from all previous reports since 2006, is available on UCP’s website using a robust new web module and design at ucp.org/public-policy/the-case-for-inclusion. Users can:

  • Compare state & national data
  • View state scorecards 
  • Interact with the ranking map 
  • See highlights of the 2012 report, top and bottom 10 states, most improved states and those with biggest drops, and  facts about the best performing states
  • Advocate for areas needing improvement in states, and promote achievements that maintain high quality outcomes, like eliminating waiting lists and closing large institutions
  • Download the full 2012 report and previous reports

Users can pull individual state outcomes and measures, track each state’s performance over time, and compare states among one another and to the US average. The Case for Inclusion data, tables and graphs are exportable and printable as needed for personal and professional use.

Importance, methodology and advocacy:
In the 1999 case Olmstead v. L.C., the U.S. Supreme Court ruled that institutionalizing individuals living with disabilities that can benefit from, and want to live in the community, was discrimination. The Case for Inclusion was developed in response to this decision, and ranks how well each state’s Medicaid programs serve Americans with ID/DD. These individuals, including the aging, deserve the same freedoms and quality of life as all Americans.

In rankings, each state and DC is analyzed and ranked based on five key outcome areas: promoting independence, tracking quality and safety, keeping families together, promoting productivity, and reaching those in need.

Significant takeaways from the 2012 ranking:

  1. All states still have room for improvement, but some states have consistently remained at the bottom since 2007, including Arkansas (#49), Illinois (#48), Mississippi (#51) and Texas (#50);
     
  2. 36 states now meet the 80/80 Community standard, which means that at least 80% of all individuals with ID/DD are served in the community, and 80% of all resources spent on those with ID/DD are for community support;
     
  3. As of 2010, 11 states have no state institutions to seclude those with ID/DD, including Alaska, Hawaii, Maine, Michigan, New Hampshire, New Mexico, Oregon (new this year), Rhode Island, Vermont, West Virginia and D.C. In addition, Minnesota closed its last remaining institution in June 2011, and another 12 states have only one institution each;
     
  4. 22 states now meet the 80% Home-like Setting standard, which means that at least 80% of all individuals with ID/DD are served in their own home, a family home, family foster care, shared apartments, or in other small group settings with fewer than three residents;
     
  5. 29 states participate in the National Core Indicators (NCI) model, a comprehensive quality assurance program that includes standard measures to asses outcomes of services (nationalcoreindicators.org);
  6. Only 15 states were supporting a large share of families through family support (at least 200 families per 100,000 of population). This is important because those support services provide assistance to families that are caring for children with disabilities at home, which helps keep families together and people with disabilities living in a community setting;
     
  7. Just nine states have at least one-third (33%) of individuals with ID/DD working in competitive employment, which best recognize and support work as key to a meaningful life. These states include Alaska, Connecticut, Delaware, Maryland, Michigan, Oklahoma, Pennsylvania, Vermont and Washington; and
     
  8. Waiting lists for critical services continue to climb and show the unmet need of individuals living with ID/DD and their families. More than a quarter of a million people (268,000) are on a waiting list for Home and Community Based Services (HCBS). To address this need, states’ HCBS programs would need to collectively increase by 46%.

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About United Cerebral Palsy
United Cerebral Palsy (UCP) educates, advocates and provides support services through an affiliate network to ensure a life without limits for people with a spectrum of disabilities. Together with nearly 100 affiliates, UCP has a mission to advance the independence, productivity and full citizenship of people disabilities by supporting more than 176,000 children and adults every day—one person at a time, one family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities—impacting the lives of millions living with disabilities. For more than 60 years, UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society. Together, with parents and caregivers, UCP will continue to push for the social, legal and technological changes that increase accessibility and independence, allowing people with disabilities to dream their own dreams, for the next 60 years, and beyond. For more information, please visit www.ucp.org


Press Briefing Wed. 1:00 p.m. EDT: UCP’S NEW REPORT SHOWS PROGRESS, FAILURES OF STATES SERVING AMERICANS WITH DISABILITIES

MEDIA ADVISORY: Press briefing

CONTACT: 
Kaelan Richards: 202-973-7175,

UCP’S NEW REPORT SHOWS PROGRESS, FAILURES OF STATES SERVING AMERICANS WITH DISABILITIES

The Case for Inclusion analyzes and ranks states on services for Americans with intellectual and development disabilities

Washington, DC (May 22, 2012)United Cerebral Palsy (UCP) will release The Case for Inclusion and host a press briefing with the author on  Wednesday, May 23 at 1:00 p.m. ET. This annual report tracks the progress of community living standards for Americans living with intellectual and developmental disabilities (ID/DD). Author Tarren Bragdon will provide insight into the rankings and data, which advocacy groups and individuals can use to raise awareness for key outcomes for people with disabilities.

WHO:            UCP

WHAT:          Press briefing with The Case for Inclusion author, Tarren Bragdon

WHEN:         1:00 p.m. ET (10:00 a.m. PT)

WHERE:       Toll-free: 1-888-450-5996

                       Participant passcode: 786597

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About United Cerebral Palsy
United Cerebral Palsy (UCP) educates, advocates and provides support services through an affiliate network to ensure a life without limits for people with a spectrum of disabilities. Together with nearly 100 affiliates, UCP has a mission to advance the independence, productivity and full citizenship of people disabilities by supporting more than 176,000 children and adults every day—one person at a time, one family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities—impacting the lives of millions living with disabilities. For more than 60 years, UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society. Together, with parents and caregivers, UCP will continue to push for the social, legal and technological changes that increase accessibility and independence, allowing people with disabilities to dream their own dreams, for the next 60 years, and beyond. For more information, please visit www.ucp.org


UCP APPLAUDS PRINCIPLES ON RESTRAINT AND SECLUSION

FOR IMMEDIATE RELEASE

CONTACT: 
Kalean Richards: 202-973-77175,  

 

UCP APPLAUDS PRINCIPLES ON RESTRAINT AND SECLUSION


Department of Education issued principles document to help educators, parents and stakeholders shape policies


Washington, DC (May 15, 2012) – United Cerebral Palsy (UCP) congratulates the Department of Education and the Obama Administration for taking a proactive stand on protecting our nation's students by highlighting the use of positive behavioral supports in schools.

Achieving a safe learning environment that is free from abuse should be the objective of every school, and the Department's 15 principles issued in today’s guiding document are a step forward in reaching that goal. As noted by the US Government Accountability Office (GAO), there is no evidence that using restraint or seclusion is effective in reducing the problem behaviors that cause these techniques to be utilized. Furthermore, there have been cases of alleged abuse, including deaths, related to the use of restraint or seclusion of children in public and private schools.

“I applaud the Department of Education and the Obama Administration for issuing this document, which will act as a guide for teachers, parents, and policymakers on behavioral interventions in schools. By using these 15 principles to determine school policies and actions, the use of restraint and seclusion in our schools will be carefully regulated and hopefully eliminated. As the GAO points out, these techniques are not only ineffective in preventing negative behaviors, but can lead to tragic consequences when used inappropriately,” said Stephen Bennett, UCP President and Chief Executive Officer.  “These principles are important for all our students, not just students living with disabilities. Every student should be able to learn and grow in a safe environment, and be given the opportunities they need to reach their fullest potential."

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About United Cerebral Palsy
United Cerebral Palsy (UCP) educates, advocates and provides support services through an affiliate network to ensure a life without limits for people with a spectrum of disabilities. Together with nearly 100affiliates, UCP has a mission to advance the independence, productivity and full citizenship of people disabilities by supporting more than 176,000 children and adults every day—one person at a time, one family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities—impacting the lives of millions living with disabilities. For more than 60 years, UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society. Together, with parents and caregivers, UCP will continue to push for the social, legal and technological changes that increase accessibility and independence, allowing people with disabilities to dream their own dreams, for the next 60 years, and beyond. For more information, please visit www.ucp.org.


UCP Guides Affiliates, Partners & Allies Through New Approach to Serving People with Disabilities to Achieve Full Inclusion, at Annual Conference

FOR IMMEDIATE RELEASE

CONTACTS: 
Lauren Cozzi: 202-973-7114, Alicia Kubert Smith: 202-973-7168, 

UCP Guides Affiliates, Partners & Allies through New Approach to Serving People with Disabilities to Achieve Full Inclusion, at Annual Conference 

Attendees explore new thinking about research, education, employment and services

Washington, DC (May 15, 2012) – United Cerebral Palsy (UCP) guided its affiliates, partners and allies to transitioning to a new approach to serving people with disabilities, during the 2012 UCP Annual Conference, themed Transitioning to Tomorrow, April 25-28 in Washington, DC. The conference explored new ways of thinking in research, education, employment and services in order to create a better future for people with disabilities.

Highlights:

  • More than 150 participants–UCP affiliates, partners and allies–gathered in Washington, DC to tackle a new approach to successfully serve people with disabilities.

  • UCP presented Awards for Excellence to nine recipients, including affiliates, individuals and companies, whose exceptional activities, achievements and dedication exemplify the UCP mission, along with the help of three actors:

    1. Emmy-nominated actress Cheryl Hines, a UCP Celebrity Ambassador and member of the UCP Board of Trustees;

    2. Actress Meredith Eaton, known for her breakout role in the ABC hit series Boston Legal, and granddaughter of one of UCP's founders, Nina Eaton; &

    3. Actor RJ Mitte, a UCP Celebrity Ambassador, known for his role as Walter White Jr. in the Emmy-nominated AMC drama Breaking Bad.

  • Five new members were appointed to UCP’s national Board of Trustees.

  • Photos are on Facebook, and information is online.


Press releases that follow:

  1. UCP Presents Awards for Excellence at 2012 Annual Conference

  2. UCP ELECTS FIVE NEW MEMBERS TO NATIONAL BOARD

  3. VGO AND UCP DEMO ADVANCED ASSISTIVE CONTROL SOLUTIONS FOR  ROBOTIC TELEPRESENCE          

About United Cerebral Palsy
United Cerebral Palsy (UCP) educates, advocates and provides support services through an affiliate network to ensure a life without limits for people with a spectrum of disabilities. Together with nearly 100 affiliates, UCP has a mission to advance the independence, productivity and full citizenship of people disabilities by supporting more than 176,000 children and adults every day—one person at a time, one family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities—impacting the lives of millions living with disabilities. For more than 60 years, UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society. Together, with parents and caregivers, UCP will continue to push for the social, legal and technological changes that increase accessibility and independence, allowing people with disabilities to dream their own dreams, for the next 60 years, and beyond. For more information, please visit www.ucp.org.

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FOR IMMEDIATE RELEASE

CONTACTS: 
Lauren Cozzi: 202-973-7114, Alicia Kubert Smith: 202-973-7168, 

UCP Presents Awards for Excellence at 2012 Annual Conference 


Recognizes exceptional activities, achievements and dedication to
exemplify the UCP mission

                                                                                                                

Washington, DC (May 15, 2012) – United Cerebral Palsy (UCP) presented the Awards for Excellence at UCP’s 2012 Annual Conference, last week in Washington, DC. The Awards for Excellence are presented annually to UCP affiliates, individuals and companies whose exceptional activities, achievements and dedication exemplify the UCP mission to educate, advocate and provides support services to ensure a life without limits for people with a spectrum of disabilities.

“UCP is proud to honor leaders in advancing the civil rights movement by promoting full inclusion for people with disabilities,” said Stephen Bennett, UCP President & Chief Executive Officer. “The Awards for Excellence are a tradition that UCP take seriously; the winners truly help make UCP’s mission a reality by advancing independence, productivity and full citizenship of people with a spectrum of disabilities.”

The eight 2012 UCP Awards for Excellence were presented to the following nine recipients at the Opening Reception and the Awards for Excellence dinner and presentation, during the Annual Conference, themed Transitioning to Tomorrow.  

  1. The 2012 Kathleen O. Maul Leadership Award was presented to Rick Forkosh, Executive Director of UCP Heartland, for his leadership and strong commitment to UCP. The award is presented to an exceptional executive director in memory of Kathy Maul, a remarkable executive director at UCP of Suffolk who died young and left a legacy of leadership ability and strong commitment to UCP. Forkosh received a painting by artist, Maurice "Mo" Higgs, as part of Art Enables, a studio and gallery in Washington, DC for emerging artists with developmental disabilities.

    Forkosh began his career working in the disability field in 1979, managing a group home with eight men. Soon later, he was promoted to Assistant Director of Residential Services, until 1983, when he joined UCP’s St. Louis affiliate–now UCP Heartland–in as Director of Adult Services. Forkosh was appointed Executive Director in 1985, and since then, the agency’s $750,000 budget now has around $9.75 million under management. UCP Heartland has won several awards at the local, state and national level for some of its new and innovative programs and supports under Forkosh’s leadership and has been continuously accredited by the Commission on Accreditation of Rehabilitation Facilities (CARF) for the past 30 years.

    “It is clear that Rick has proven leadership ability, but what about Rick the man?” asked UCP President & CEO, Stephen Bennett, during the Opening Reception at the 2012 Annual Conference. “His peers would call him passionate about the mission, tenacious about civil rights, a formidable executive with a dry sense of humor, and a gentle giant of a man who loves a good debate! I remember one Monday morning years ago, calling Rick to touch base, and when I asked how Rick was doing, he explained he wasn’t so well. It turned out that he had been up driving UCP clients around all Sunday evening after an agency had closed, and he was trying to find them a place to sleep. You don’t hear about type of dedication often, and Rick is a UCP executive who has dedicated his life to helping people with disabilities, no matter the circumstance.”
     
  2. The 2012 Chair Award was presented to The Medtronic Foundation, and is given to an individual, organization or company whose impact and support for UCP and its mission is deemed exemplary by the national Board of Trustees Chair. The Medtronic Foundation received a painting by artist, Darnell Curtis, as part of Art Enables.

    Medtronic and the Medtronic Foundation stand as a model of aligning corporate philanthropy with the needs of the real people they serve. Medtronic has a long-time commitment to innovation, pushing the boundaries of medical technology to transform the lives of people with disabilities and chronic disease. The company’s sponsorship of the Medtronic Foundation and its work has created strong supports for patients and families, including many in the UCP network. Through programs like PatientLink, the Medtronic Foundation builds awareness, educates and advocates on behalf of patients and their families, to improve the lives of people living with chronic disease and disabilities.

    “UCP has been proud to partner with Medtronic and the Medtronic Foundation to bring vital resources to people that need them most,” remarked Bruce Merlin Fried, Chair of UCP’s national Board of Trustees, during the Opening Reception at the 2012 Annual Conference. “We are grateful for Medtronic’s foundational support of our programs, including My Child Without Limits and now Brave Kids.”
     
  3. The 2012 Ritter Legacy Award was presented to UCP of Maine for its monthly YouTube UCP NEWS broadcast. The award honors an affiliate that has produced exemplary communications through a variety of media that increase public awareness about people with disabilities, the programs of the affiliate and the national UCP brand through the use of the official UCP logo, colors and messaging.

    UCP NEWS was created with a goal to share news and information related to UCP of Maine’s agency and mission, on both local and national levels, expanding the UCP message in ways that would otherwise be impossible. Utilizing the popular YouTube media platform, UCP NEWS has the ability to reach people with disabilities, their families, caregivers, friends, neighbors and even elected officials online. Because of UCP NEWS, UCP of Maine is able to raise awareness and advocate in a more modern way, reaching across many generations.
     
  4. The 2012 Nina Eaton Program of the Year Award was presented to UCP of San Luis Obispo County for its CIP Tours program, resulting from its extraordinary contribution to the quality of life of people with disabilities, enabling individuals served to become more independent, productive or integrated into the family or community.

    CIP Tours is a program that allows adults with disabilities to have inclusive vacation experiences. There are 12 big trips each year, which have included Disneyland, San Diego, Las Vegas, Jamaica, Alaska and many Participants save money in advance and participate in the trip planning, and support staff is trained to promote full independence and inclusion of all participants. CIP Tours CIP Tours provides a true vacation experience for individuals with disabilities.

    Nina Eaton
    was one of UCP’s founding members and passed away only a few weeks ago. Nina’s granddaughter, Meredith Eaton–a movie and television actress, known for her breakout role in the ABC series Boston Legal and the movie Unconditional Love–attended the Awards for Excellence to present the award in honor of her late grandmother.

    Speaking about her grandmother, Meredith Eaton, remarked, “Nana frequently spoke about her wish for a more accessible world for the disabled community. Imbued with a sense of compassion and determination, she always felt there was still so much more to do… Her imprint on this organization is ever lasting and the stories that we all have about this gorgeous, white haired lady with the effervescent smile and humanistic spirit will live on in our hearts forever.”
     
  5. The 2012 Outstanding Youth Award was presented to Brooke Arnold, nominated by UCP of Baton Rouge, for significantly enhancing the lives of people with disabilities through care giving, volunteerism, advocacy, innovation or fundraising.

    Arnold has been an unwavering supporter for families of children with disabilities served by the UCP of Baton Rouge for nine years -- quite a feat considering she is only 19 years old. As an individual with a disability, Arnold uses her experiences overcoming challenges to inspire and encourage those around her. She has formed and participated in support groups for parents and individuals with disabilities and even started her own popular Facebook support group called CP and Me. Arnold has volunteered at UCP of Baton Rouge’s Capably Arts program, co-led a Siblings group, spoken as part of a fundraising appeal at an annual breakfast event, and participated in UCP of Baton Rouge’s 5K Run, Walk & Roll. She even secured a grant from the Clay Aiken Foundation for a wheelchair accessible swing for a local playground. Arnold changes perceptions of people with disabilities by living her life with an unparalleled “can do” positive attitude, increasing CP awareness in her community and becoming a role model for others. 
     
  6. The 2012 Universal Accessibility Design Award was presented to Patrick Baechle of Baechle & Associates, for designing the Alleghenies UCP Blair County Community Service Center. The award is presented to an individual, business, government or governmental agency that has provided leadership developing a universally accessible environment by creating new tools modifying the environment, enhancing independent living or achieving a barrier-free environment.

    The Center was designed beyond meeting building codes and ADA accessible standards by Baechle & Associates to make a more enjoyable environment for those who strive for dignity and independence while living with a disability.

    Enhanced features were incorporated to accommodate those with special needs, particularly those who have difficulty interpreting and reacting to sensory information, reaching and manipulation disabilities and poor coordination abilities. Some of these features include additional room in corridors for large wheelchair turning, exceptionally spacious restrooms with simple push button locks and door openers, a strobe light fire alarm system, impact resistant walls, an accessible kitchenette, a vehicle canopy and a curbless sidewalk at the drop off area.

    These and other planned facility improvements show creativity and innovation while exceeding the accessibility standards. Because of the insight put in to the facility’s design, the final product meets the needs of multiple generations and multiple facets of the community, including those with and without disabilities.

    The community center provides a fully accessible space for Alleghenies UCP programming, training and public events, including assistive technology demonstrations and training, certified personal care aide training, consumer art workshops, computer classes for individuals with disabilities utilizing available adaptive equipment, consumer cooking classes and many more community supported social clubs, entertainment events, support groups, public gatherings and trainings.

    “Thanks to the work of Pat Baechle, the Alleghenies UCP Blair County Community Service Center furthers the UCP mission to support individuals with disabilities, and the center supports community needs by treating all persons with respect and raises public awareness for the need to accessible facilities,” said Bruce Merlin Fried, Chair of UCP’s national Board of Trustees, before presenting Baechle with his award, during the Awards for Excellence dinner and presentation.
     
  7. The 2012 the Ethel Hausman Volunteer of the Year Award honors exceptional individuals who, through volunteering, has made an outstanding contribution to UCP. 2012 had so many exceptional nominations that the Awards Committee chose two recipients.

    The first awardee was Tim Noonan, nominated by UCP Central Pennsylvania. Noonan has donated more than 1,600 hours of service over 10 years to the betterment of the lives of individuals with intellectual and developmental disabilities in Pennsylvania’s Perry and Cumberland counties. Noonan is the co-founder and co-chair of the Cumberland-Perry Residential Task Force, an initiative seeking residential solutions for people with intellectual disabilities. He worked to expand the scope of the Task Force to include Employment and Respite services and secured funds so these essential programs are provided to families at minimal cost. As a result of his hard work and determination, more than 120 individuals were placed in one of 15 new group homes, 12 apartments and in family living arrangements. Many other people received the support they needed to live fuller lives in their community, receive job training and placement and support transitioning from school to adult life.

    The second Ethel Hausman award recipient is Micki James from UCP of the Inland Empire. James has been a UCP volunteer for more than 60 years. Along with her late-husband Dennis James, she played an integral part in UCP’s history, and her impact has been incredible. Her son, Brad James, accepted the award on her behalf.
     
  8. The 2012 Life Without Limits Award was presented to Bonnie Peterson, nominated by UCP of Central California, as an individual with disabilities who has demonstrated leadership and achievement of such caliber as to be a significant role model to individuals with and without disabilities.

    Peterson was born in 1949, when children with disabilities were not encouraged to expect to have lives as full productive citizens. However, Peterson gracefully overcame every obstacle that came her way. She built a life that included a marriage of more than 40 years. She and her late husband lived their lives as full citizens, and they educated their community to the reality that people with disabilities are simply people.

    Peterson is a mother, a grandmother, a business owner and an active community volunteer, whose compassion and care seemingly know no limits. She is also a published author. In We Climbed Every Mountain, Bonnie shares with the world what it has been like to live her life as a person with a disability. She describes in her book, and exemplifies in her journey through life, that no obstacle is too great no matter what the odds against one may be. Bonnie has not just accomplished ordinary things in extraordinary ways, but she has taken hold of the extraordinary and made is part of an ordinary, “just like any other person” kind of life.  

Individuals who volunteered significant time with UCP affiliates were also recognized as Victory 100 winners. In 2011, Victory 100 winners included 182 volunteers from 13 UCP affiliates, who volunteered a total of 28,120 hours. Each volunteer dedicated at least 100 hours of service by participating on a board, assisting in fundraising activities, and performing other needed volunteer work.

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FOR IMMEDIATE RELEASE

CONTACTS: 
Lauren Cozzi: 202-973-7114, Alicia Kubert Smith: 202-973-7168, 

UCP Elects Five New Members to National Board

New cohort brings depth in changing landscape for people with disabilities


Washington, DC
 (May 15, 2012) – United Cerebral Palsy (UCP) elected five new members to its Board of Trustees during its 2012 Annual Conference in Washington, DC, including the following:

  • Michael A. Burke, Jr. is a co-founder and principal of Thrive Office, a newly formed innovative, shared workplace community based in New York City, focusing on emerging trends in the workplace based on the evolving preferences of a new generation of workers. His background is in commercial real estate and direct sales. Previously, Burke worked in the commercial office brokerage business in the Washington, DC metro region for Cassidy Turley and Avison Young. Burke has a personal relationship with the disability community as his youngest brother has CP.  Throughout his professional career, he has been actively involved in multiple philanthropic organizations centered on disability issues and advocacy, and was a key component in founding ABLE, UCP’s young professionals outreach program.

  • Ruth Gullerud is retiring this month as Executive Director of UCP of West Central Wisconsin, where she has worked since 1977. Previously, Gullerud was an advocate and guidance counselor with the Women’s Community Center in Eau Claire, Wisconsin; a member of the Wisconsin State Board for People with Disabilities, a member of the Wisconsin Exceptional Education Council for Department of Public Instruction, and a member of the Board of the Accreditation Council on Services for People with Disabilities. Gullerud currently serves on the Eau Claire County Advisory Committee on Specialized Transportation and the Wisconsin Alliance for Self-Determination.  A recipient of several outstanding leadership and management awards, Ruth had the pleasure of hosting the Ruth Gullerud Show, focused on the world through challenges of disability.

  • Melvin “Chip” Hurley has over 30 years of healthcare and management experience in accounting, auditing and consulting with two "Big 4" professional services firms (18 years at E&Y and four years at PwC); two national consulting firms (nine years at Navigant Consulting and currently at Berkeley Research Group, LLC); and three years corporate management experience with Helix Health, a five-hospital integrated healthcare delivery system. He has extensive experience in leading hospital improvement projects, supporting mergers and acquisitions of hospitals, providing litigation support, and conducting audits of hospitals. Hurley previously served as Chairman of the Board of Directors of UCP of Central Maryland, and as a licensed CPA, FHFMA, Hurley currently serves as Chair of UCP’s Audit Committee.

  • Linda Cox Maguire has been a consultant at Maguire Associates since 1985 where she leads initiatives in global markets and heads up projects across company service lines. She began her career in the corporate world, before she returned to higher education where she served in leadership positions in admissions for nine years. Maguire chaired the Board of Trustees at Sea Education Association in Woods Hole, Mass., is corporator at a local hospital, and is currently vice president of the Board of Directors for UCP of Metro Boston, of which she has also been past president. Maguire received her bachelor’s degree from Douglass College of Rutgers University and her master’s degree in educational administration from Boston College.

  • Rob White is Chief Executive Officer of Cerebral Palsy Alliance, a UCP affiliate based in Sydney, Australia. With 26 years of service with the organization, and 12 as CEO, White has a deep appreciation of the key issues that face service providers, government, clients and families. Cerebral Palsy Alliance was the first international affiliate of UCP. Since 2005, the affiliate’s Research Foundation to raise funds to promote international research into prevention of and cure for CP, raising over $23 million (AUD) and approved $4.9 million (AUD) in research grants to international researchers in the field of cerebral palsy, to date. White has been an active member of the National Disability Services New South Wales State Committee for 11 years, previously held the position of President of Cerebral Palsy Australia, and has sat on a number of state and national committees serving the interests of service providers in the disability field. White has a Masters in Psychology and an MBA.

Coming off the national board at the end of the fiscal year on September 30 are Bruce Merlin Fried, Board Chair; Michael Burke Sr., Vice Treasurer; and Cheryl Hines, who will remain in her capacity as UCP Celebrity Ambassador. All plan to remain very engaged with UCP support, advocacy and events.       

To view UCP’s Board of Trustees, please visit ucp.org/about/board.

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FOR IMMEDIATE RELEASE

CONTACTS: 
Lauren Cozzi: 202-973-7114, Alicia Kubert Smith: 202-973-7168, Ned Semonite: 978-831-3195,           

VGo and UCP Demo Advanced Assistive Control Solutions
for
Robotic Telepresence


Organizations have partnered to develop new tools for people with disabilities to expand their independence


Nashua, NH & Washington, DC,
(April 26, 2012) – VGo Communications, the leader in robotic telepresence, and United Cerebral Palsy (UCP) today announced a partnership to collaborate and work together to define and deliver accessibility enhancements to VGo’s robotic telepresence solution. A demonstration of prototype voice activated remote robotic telepresence driving controls will be seen by attendees of the 2012 UCP Annual Conference, Transitioning to Tomorrow, in Washington, DC.

“We saw what VGo was doing for homebound students and realized that with some usability enhancements, VGo could be a dramatic life altering tool for many people with disabilities,” said Stephen Bennett, UCP President and CEO. “Imagine the opportunities and quality of life improvements for people who currently cannot go places because their disability prevents access or makes it too expensive. UCP is excited to be working with VGo to make this technology available to people with disabilities so they can live life without limits.”

"We’re very excited about jointly developing specific usability enhancements for people served by United Cerebral Palsy," said Peter N. Vicars, CEO of VGo. "Our users today find controlling a VGo with their computer mouse or keyboard keys very easy, but indeed not everyone can use a computer in a traditional way.  We know how impactful VGo has been for students that are homebound and can’t go to school.  Soon VGo can be available to other disabled people so they can move around in a distant place without first having to get themselves there."

For more information about VGo, visit www.vgocom.com.

About VGo
VGo Communications, Inc. develops and markets visual communications solutions for the workplace. The company was founded in 2007 by experienced successful veterans of the visual communications and robotics industries. VGo has leveraged the recent trends of widespread wireless high speed networks, lower specialized component costs and the universal acceptance of video as a communications medium to become the Robotic Telepresence market leader.

With the VGo solution, an individual’s presence is replicated in a distant location such that they can interact and perform their job in ways not previously possible. Now they can see, be seen, hear, be heard and move around in any remote facility –just as if they were there. VGo enables: healthcare providers to deliver lower cost services and improved quality of care, businesses to increase productivity of remote and travelling employees, and homebound students to attend school – all with a great user experience and at an affordable price.

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Independent Sector Announces the Selection of 2012 American Express NGen Fellows

For Immediate Release: May 10, 2012

Contact: Kristina Gawrgy Campbell; 202 467-6144; KristinaC@IndependentSector.org

Independent Sector Announces the Selection of 2012 American Express NGen Fellows

(Washington, DC)—Independent Sector is pleased to honor the 12 outstanding under-40 leaders from IS member organizations that comprise the 2012 American Express NGen Fellows Program. In its fourth year, this selective fellowship program continues to build the next generation of nonprofit and philanthropic leaders as part of IS’s NGen: Moving Nonprofit Leaders from Next to Now initiative.

The 2012 American Express NGen Fellows are:

  • Ellie Buteau, Vice President-Research, The Center for Effective Philanthropy, Cambridge, MA• Tammy Gregory, Vice President, Quality and Health IT, American Heart Association, Dallas, TX
  • Michael Hill, Senior Vice President of External Affairs, United Cerebral Palsy, Washington, DC
  • David Lee, Policy Advocate, Feeding America, Chicago, IL
  • Katherine Michonski, Director, Business Council on Climate Change, San Francisco, CA
  • Dara Munson, President & CEO, Big Brothers Big Sisters of Metropolitan Detroit, MI
  • Alejandro T. Reyes, Counsel, Lawyers' Committee for Civil Rights Under Law, Washington, DC
  • David Ringer, Media Relations Director, National Audubon Society, New York, NY
  • Jennifer Sigler, CFO/COO, GlobalGiving Foundation, Washington, DC
  • Eric Stowe, Founder & Executive Director, A Child’s Right, Seattle, WA
  • Lindsay Torrico, Manager, Public Policy, United Way Worldwide, Alexandria, VA
  • Vivian Vasallo, Vice President, Housing, AARP Foundation, Washington, DC


The American Express NGen Fellows program gives emerging leaders an exceptional opportunity to strengthen their capacity for future impact. Over the course of nine months, fellows collaborate with other talented under-40 leaders, interact with established mentors, and contribute to Independent Sector's work on nonprofit impact and leadership.

“Each year, I am impressed by the caliber of extraordinary young leaders selected for the American Express NGen Fellows program,” said Diana Aviv, president and CEO of Independent Sector. “I look forward to welcoming these talented leaders to our highest echelons, learning from them, and partnering with them to improve life for all.”

The American Express NGen Fellows Program offers these twelve professionals a rare opportunity to strengthen their capacity for future impact. Its programming, anchored by the IS Annual Conference, offers a comprehensive program that develops fellows’ capacity to lead in turbulent times, strengthens their professional networks, and elevates NGen accomplishments on a national level. Over the course of their fellowship, they will also embark on a major keystone project that will positively impact the sector.

“The nonprofit sector plays a critically important role in addressing many of today’s biggest challenges,” said Timothy J. McClimon, president of the American Express Foundation. “Independent Sector and the

NGen Fellows Program offer a great way to focus on strategies that can develop the next generation of leaders and help nonprofits deliver on their full potential to serve the communities in which we all live and work.”

The program runs August 1, 2012 to April 30, 2013, anchored by the IS Annual Conference on November 11-12 in San Francisco.

American Express, the lead sponsor of the American Express NGen Fellows Program, is a major contributor to the development of emerging nonprofit leaders through their Foundation’s philanthropic giving initiative committed to leadership.

Learn more about the American Express NGen Fellows Program.

Read the bios for each of the 2012 American Express NGen Fellows.

###

Independent Sector is a leadership network of 600 nonprofits, foundations, and corporate giving programs committed to advancing the common good. Our nonpartisan coalition leads, strengthens, and mobilizes the sector; we advocate for public policies that fortify our communities; and we create unparalleled resources so staff, boards, and volunteers can further their missions and increase their impact. IndependentSector.org.

American Express is a global services company, providing customers with access to products, insights and experiences that enrich lives and build business success. Learn more at americanexpress.com and connect with us on facebook.com/americanexpress, twitter.com/americanexpress and youtube.com/americanexpress.

One of American Express' three philanthropic platforms, Developing New Leaders for Tomorrow, recognizes the significance of strong leadership in the nonprofit sector. American Express is making grants focused on training high potential emerging leaders to tackle important issues in the 21st century.


CIRCLE K FLORIDA DONATES MORE THAN HALF A MILLION DOLLARS TO UNITED CEREBRAL PALSY AFFILIATES IN FLORIDA

FOR IMMEDIATE RELEASE

CONTACTS: 
Lauren Cozzi: 202-973-7114, Alicia Kubert Smith: 202-973-7168, 

CIRCLE K FLORIDA DONATES MORE THAN HALF A MILLION DOLLARS TO
UNITED CEREBRAL PALSY AFFILIATES IN FLORIDA
 

Presentation at annual fundraising event underscores support 
for people with disabilities in Florida communities

Fort Myers, Fla. (May 10, 2012) – Circle K Florida, the largest corporate supporter of United Cerebral Palsy (UCP), presented UCP affiliates with an oversized check for $552,837.73 during an awards dinner and ceremony at the company’s FishStix 2012, an annual golf and fishing tournament at the Sanibel Harbour Marriott Resort & Spa in Fort Myers, Florida. The amount represents the proceeds that were raised from last year’s FishStix event and funds raised through canister donations and other in-store promotions from June 2011 - March 2012.

The check presentation ceremony included Circle K Florida executives, Regional Operations Directors and Store Managers; UCP executives from the Florida affiliates that benefit from Circle K Florida donations; and executives and staff from UCP’s national office in Washington, DC.

UCP shared a special video highlighting UCP clients from six UCP Florida affiliates that were featured in UCP and Circle K’s “Adopt a Child/Adopt a Life” campaign this year. The campaign celebrates and promotes the tremendous difference that Circle K has made in communities across Florida by featuring the story and photo of a UCP client on each coin collection canister that lives in the region that that particular store serves. The campaign helps emphasize that Circle K customers who donate at the register are supporting those in their immediate community.

“Without Circle K’s support, there are many types of services that we provide that we couldn’t continue to provide. Circle K Florida has such a huge impact – hundreds of thousands of people are impacted by their support, just in our territory alone,” said Craig Byrd, Executive Director of UCP of East Central Florida, in the video. 

“Circle K Florida cares deeply about the communities where we have stores and operate,” explained Darrell Davis, Vice President of Circle K Florida. “It is paramount for Circle K Florida to give back to the people that we serve, and our decades-long partnership with UCP will continue to raise funds that serve local people with disabilities, making Florida communities stronger and inclusive of everyone.”

“UCP is grateful to Circle K Florida for its unwavering support of our affiliates serving people with disabilities in their local communities,” said UCP President & CEO, Stephen Bennett. “The partnership with Circle K Florida is unlike any other corporate partnership, because Circle K Florida’s culture has made fundraising for UCP a part of the company culture for thousands of Circle K employees over decades, significantly furthering UCP’s mission to advance independence, productivity and full citizenship of people with disabilities.”

Acclaimed actress, comedian, author and disability advocate Geri Jewell was on hand to entertain attendees and celebrate the importance of Circle K Florida’s partnership with UCP. Ms. Jewell is best known as Cousin Geri on the NBC sitcom, “The Facts of Life” and was the first person with a disability to have a regular role on a prime time series. She began her career doing stand up comedy at the Comedy Store in 1978.

After her ground breaking role on “The Facts of Life,” she has appeared on such shows as “The Great Space Coaster,” the Emmy award-winning movie Two of a Kind, “Sesame Street,” “21 Jump Street,” “The Young and the Restless,” “Strong Medicine,” and the HBO hit series, “Deadwood.” Ms. Jewell just recently released her autobiography, I’m Walking As Straight as I Can: Transcending Disability in Hollywood and Beyond. Just this week, the book was acknowledged with a first place prize in the memoirs category of the Independent Publisher Book Awards.

Ms. Jewell entertained the audience with stories from her varied career in Hollywood and experiences as a person with a disability. She emphasized that the real disabilities in life are prejudice, negativity and hatred.

UCP-Circle K Partnership
When the Circle K Corporation purchased the UtoteM chain of convenience stores in 1984, Circle K management adopted UCP as the company’s designated charity. Today, UCP remains Circle K’s charity of choice in the Florida and Gulf regions. Circle K stands as UCP’s largest corporate sponsor, having raised more than $40 million over the life of the partnership through coin collection canisters at retail sites and with special events like golf tournaments, casual days, bake sales and car washes.

Circle K and UCP use campaigns that aim to deepen Circle K Florida’s connection to the community and increase support for the UCP affiliates in the region. The “Adopt a Child/Adopt a Life” campaign helps to celebrate and promote the tremendous difference that Circle K Florida has made in communities across Florida. Each coin collection canister in every Circle K Florida store features the story and photo of a UCP client living in the region, which each particular store serves. Circle K Florida customers donating at the register see a true example of one of the many UCP clients that their donation helps to support in the immediate community.                               

This type of targeted campaign that ties donors to outcomes is designed to trumpet the good work of Circle K as a community partner and good corporate citizen. At the same time, it raises public awareness of UCP and the services it provides to people with disabilities, and raise crucial funds that will change their lives for the better. View all canister inserts online at: ucp.org/get-involved/whysupport/circle-k-adopt-a-child-adopt-a-life-campaign.

The “Be a Star” campaign, ran last fall through the holiday season, whereby Circle K Florida patrons were able to purchase a “star” that includes coupons for in-store use on select products. The stars hung throughout the stores to help raise awareness of Circle K’s support of UCP, visualize the significant impact people can have in the lives of people with disabilities in their communities, and encourage other customers to support. This campaign reinforced Circle K Florida’s philosophy of giving back to the communities of which they are a part, by inspiring individuals to support those in their community who need it most.

UCP presented Circle K with its 2011 Chair Award in recognition of a partnership that has spanned three decades and seen the convenience store chain donate tens of millions of dollars to the charity. The Chair Award is UCP’s highest honor and is given by the Chair of UCP’s National Board of Trustees for exemplary commitment to UCP’s mission, as part of UCP’s annual Awards for Excellence, presented to UCP affiliates, individuals and companies whose exceptional activities, achievements and dedication exemplify the UCP mission.

# # #

About United Cerebral Palsy
United Cerebral Palsy (UCP) educates, advocates and provides support services through an affiliate network to ensure a life without limits for people with a spectrum of disabilities. Together with nearly 100 affiliates, UCP has a mission to advance the independence, productivity and full citizenship of people disabilities by supporting more than 176,000 children and adults every day—one person at a time, one family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities—impacting the lives of millions living with disabilities. For more than 60 years, UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society. Together, with parents and caregivers, UCP will continue to push for the social, legal and technological changes that increase accessibility and independence, allowing people with disabilities to dream their own dreams, for the next 60 years, and beyond. For more information, please visit www.ucp.org.


Actors Honor Awards Recipients at UCP Annual Conference Recognizing People and Companies that Exemplify Life Without Limits for People with Disabilities

    • UCP 2011 Awards for Excellence

 

MEDIA ADVISORY

CONTACTS: 
Lauren Cozzi: 202-973-7114, Alicia Kubert Smith: 202-973-7168, 

Actors Honor Awards Recipients at UCP Annual Conference

Recognizing People and Companies that Exemplify
Life Without Limits for People with Disabilities

Emmy-nominated actress Cheryl Hines, of ABC’s Suburgatory & HBO’s Curb Your Enthusiasm

Meredith Eaton, of ABC’s Boston Legal & granddaughter of UCP founder

Washington, DC (April 2012)United Cerebral Palsy (UCP) an international advocate, educating and providing support services for children and adults with a spectrum of disabilities welcomes Emmy-nominated actress Cheryl Hines, a UCP Celebrity Ambassador and member of the national Board of Trustees, and actress Meredith Eaton, well known for her breakout role in the ABC hit series Boston Legal, and granddaughter of one of UCP's founders, Nina Eaton, at the UCP Awards for Excellence dinner during UCP’s 2012 Annual Conference, Transitioning to Tomorrow, Friday, April 27, 6:30-10:00 p.m., Grand Hyatt Washington, 1000 H Street NW, Washington, DC.

WHO:      Cheryl Hines, Emmy-nominated actress, UCP Celebrity Ambassador and member of the UCP Board of Trustees; and actress Meredith Eaton, well known for her breakout role in the ABC hit series Boston Legal, and granddaughter of one of UCP's founders, Nina Eaton.                                                        

WHAT:    Each year, the UCP Awards for Excellence are presented to affiliates, individuals and companies whose exceptional activities, achievements and dedication exemplify the UCP mission to educate, advocate and provides support services to ensure a life without limits for people with a spectrum of disabilities.

Hines will co-host the Awards for Excellence dinner and celebration along with UCP Board Chair, Bruce Merlin Friend. Eaton will represent her family for a tribute to her grandmother, Nina Eaton. Nina was a founding member of the New York State Cerebral Palsy Association in 1946, which evolved into UCP in 1949. She remained an active leader in the disability community, and served on the Board of Directors of UCP of Suffolk for 20 years, on the UCP national Board of Trustees, and most recently as an Emeritus board member, up until her passing, last month.

WHEN:   Friday, April 27, 2012, 6:30-10:00 p.m. ET

WHERE:      Grand Hyatt Washington, 1000 H Street NW, Washington, DC 20001

PRESS:  For press interested in covering the Awards for Excellence, interviews and additional information, contact Lauren Cozzi, .

* Included is a photo of UCP Celebrity Ambassadors, Cheryl Hines and RJ Mitte with students from the Villanova University social justice film class, who were recipients of the UCP 2011 Outstanding Youth Award.

About United Cerebral Palsy
United Cerebral Palsy (UCP) educates, advocates and provides support services to ensure a life without limits for people with a spectrum of disabilities. Together with nearly 100 affiliates, UCP has a mission to advance the independence, productivity and full citizenship of people with disabilities by supporting more than 176,000 children and adults every day—one person at a time, one family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities—impacting the lives of millions living with disabilities. For more than 60 years, UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society. Together, with parents and caregivers, UCP will continue to push for the social, legal and technological changes that increase accessibility and independence, allowing people with disabilities to dream their own dreams, for the next 60 years, and beyond. For more information, please visit www.ucp.org.

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UCP Launches New Online Resource for Kids & Parents

FOR IMMEDIATE RELEASE

CONTACTS:
Lauren Cozzi: 202-973-7114, Alicia Kubert Smith: 202-973-7168,

UCP Launches New Online Resource for Kids & Parents

Overhaul of Brave Kids portal second phase of new Public Education & Outreach efforts

Washington, DC (April 11, 2012) – When Kristen Fitzgerald lost two of her children to catastrophic illnesses, she pledged to redirect the anguish of her tragic experiences toward easing the suffering of seriously ill children and helping parents avoid the struggle of finding resources and emotional support for their own children. She founded “Brave Kids,” an online portal for information and support, and now, almost 12 years later to the day, United Cerebral Palsy (UCP) has molded Fitzgerald’s vision of love into a powerful new resource for kids and parents, adding the perspective of people with disabilities.

Brave Kids was launched in the San Francisco Bay Area during March 2000. The Brave Kids website rolled out nationwide in 2002, in collaboration with the University of California, San Francisco; the Lucile Packard Children's Hospital; and a number of corporate sponsors. Following the launch, Brave Kids donated resource centers to pediatric wards of hospitals located in California and Florida. UCP took ownership of the website in 2011, and is proud to carry on the legacy of Brave Kids by providing the information, resources and support that visitors and users have come to trust and rely upon.

The new Brave Kids (bravekids.org) is an encyclopedic resource for children, youth and teens ages 6-17 with chronic/life-threatening illnesses and disabilities, their families and caregivers, providing information and resources on numerous disabilities, medical conditions and genetic diseases. It includes a secure online community for parents and caregivers to share ideas, gain support and have conversations about issues relevant to this group.  Brave Kids is a part of UCP’s new Public Education & Outreach initiative, which aims to provide vital support and information to people with their disabilities and their families during key moments of transition. For more information, visit ucp.org/publiced.

“UCP is proud to couple UCP’s strong tradition of serving people with disabilities and their families with Kristen Fitzgerald’s vision that no parent should feel alone in times of grief and struggle,” said Stephen Bennett, UCP President & CEO. “Brave Kids is a critical piece of UCP’s Public Education & Outreach initiatives, which guide people with disabilities and caregivers through the entire life cycle. UCP is delighted to relaunch Brave Kids and deliver regularly updated news and content through the resource.”

Brave Kids provides the following:

1.       Information, resources and a support community. In addition to detailed information about health and wellness, family and caregivers can sign up for a monthly newsletter and connect with Brave Kids on social media platforms by following Brave Kids on Twitter and Facebook. Users will also stay up to date on current issues. An important part of Brave Kids is the secure support community of individuals whose common experiences help to build connections are share information.

2.       A place for kids, youth and teenagers 6-17, to get information to lead fuller, richer lives. The special Just for Kids section helps young people access information that helps them lead a life without limits, giving tips and tools about growing up in today's world. The website is specifically created to be simple for both children/teens and adults to navigate.

3.       A vital link in UCP’s continuum of transitions initiatives that span the entire life cycle. UCP’s Public Education & Outreach (PEO) efforts provide people with disabilities, their families and caregivers with support, resources and information throughout all stages of life for a life without limits. This is part of UCP’s mission to advance the independence, productivity and full citizenship of people with a spectrum of disabilities.

Brave Kids would not have been possible without generous donations from the Medtronic Foundation and Shionogi. Inc. “We could not have brought Brave Kids to a wider audience without the support of these two key partners,” Bennett said. “Both understand the importance of quality, objective information to parents and caregivers and care deeply about the future lives of those we serve.”

For more information on how you can support Brave Kids or any of UCP’s Public Education & Outreach efforts, please contact Nick Pietras, Manager of Strategic Partnership & Events, at .

About United Cerebral Palsy
United Cerebral Palsy (UCP) educates, advocates and provides support services to ensure a life without limits for people with a spectrum of disabilities. Together with nearly 100 affiliates, UCP has a mission to advance the independence, productivity and full citizenship of people with disabilities by supporting more than 176,000 children and adults every day—one person at a time, one family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities—impacting the lives of millions living with disabilities. For more than 60 years, UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society. Together, with parents and caregivers, UCP will continue to push for the social, legal and technological changes that increase accessibility and independence, allowing people with disabilities to dream their own dreams, for the next 60 years, and beyond. For more information, please visit www.ucp.org.

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UCP Celebrates Life & Accomplishments of Founder and Board Member, Nina Eaton

FOR IMMEDIATE RELEASE

CONTACTS:
Lauren Cozzi: 202-973-7114, Alicia Kubert Smith: 202-973-7168,

UCP Celebrates Life & Accomplishments of Founder and Board Member, Nina Eaton

Entire disability community mourns loss of dedicated, accomplished colleague

Washington, DC (April 2, 2012) – United Cerebral Palsy (UCP) -- an international advocate, educating and providing support services for children and adults with a spectrum of disabilities -- mourns the loss of Nina Eaton, one UCP’s founders, an Emeritus member of the Board of Trustees, and a longtime supporter and advocate for people with disabilities, who passed away on Friday, March 30.      

“UCP is saddened to lose such a tremendous advocate whose life’s work has been integral to advancing the civil rights movement for people with disabilities,” said Stephen Bennett, UCP President & CEO. “Nina was an amazing woman and will be greatly missed among the UCP family and disability advocates. Our deepest sympathies go to the entire Eaton family.”

A funeral service was held at Boulevard-Riverside-Hewlett Chapel, 1450 Broadway, Hewlett, New York 11557, this morning, and the family will be sitting Shiva on Monday and Tuesday at 8 Hazel Place, Woodmere, New York 11598. Cards and notes of condolence can be sent to the Eaton family, 543 Derby Avenue, Woodmere, New York 11598.

Eaton’s son, Leonard Eaton, was born with cerebral palsy in 1941 and led his young, uncertain mother towards a lifetime of advocacy for people with disabilities. Eaton and other parents, including UCP founders Leonard and Isabelle Goldenson along with Jack and Ethel Hausman, laid the foundation for a far-reaching organization that has enhanced the lives of millions of Americans with disabilities. More than a half century later, UCP is an international network of nearly 100 affiliates serving more than 176,000 people with disabilities and their families on a daily basis.

Eaton was a founding member of the New York State Cerebral Palsy Association in 1946. As the organization evolved into UCP in 1949, Eaton helped educate communities about cerebral palsy, which, like most developmental disabilities at the time, carried significant social stigma. She is well known for her persistent lobbying, leading to regional and national expansion of community-based services for people with disabilities.

Eaton remained an active leader in the disability community, and served on the Board of Directors of UCP of Suffolk for the past 20 years. She also served on the UCP national Board of Trustees and most recently as an Emeritus board member. 

UCP honors an affiliate with the Nina Eaton Program of the Year Award, as part of the UCP Awards for Excellence, on an annual basis. The UCP affiliate award winners are honored for making an extraordinary contribution to the quality of life to people with disabilities through the delivery of state-of-the art direct services in the affiliate's community. Award recipients are chosen based on affiliates’ ability to enable the individuals served to become more independent, productive or integrated into the family or community, and the programs stand out as a model worthy of replication by other UCP affiliates. Eaton loved the Awards for Excellence presentations and served as the Emcee for many years. She added her charm and wit to the evening of celebrating the accomplishments of UCP affiliates and individuals, in multiple categories.

“Nina was so much a part of our history and our lives,” said Stephen H. Friedman, President and CEO, UCP of Suffolk. “The lives of individuals with disabilities will be forever enriched because of her legacy. I know you all join me in extending sincere sympathy to the Eaton family.”

About United Cerebral Palsy
United Cerebral Palsy (UCP) educates, advocates and provides support services to ensure a life without limits for people with a spectrum of disabilities. Together with nearly 100 affiliates, UCP has a mission to advance the independence, productivity and full citizenship of people with disabilities by supporting more than 176,000 children and adults every day—one person at a time, one family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities—impacting the lives of millions living with disabilities. For more than 60 years, UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society. Together, with parents and caregivers, UCP will continue to push for the social, legal and technological changes that increase accessibility and independence, allowing people with disabilities to dream their own dreams, for the next 60 years, and beyond. For more information, please visit www.ucp.org.

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CONGRESSIONAL COMMUNICATIONS DIRECTOR JOINS GROWING POLICY TEAM AT UCP

CONTACTS: 
Lauren Cozzi: 202-973-7114, Alicia Kubert Smith, 202-973-7168,


CONGRESSIONAL COMMUNICATIONS DIRECTOR JOINS
GROWING POLICY TEAM AT UCP

Richards to assume role as Director of Policy Communications

Washington, DC (March 27, 2012) – United Cerebral Palsy (UCP), an international service provider and advocate for children and adults with a spectrum of disabilities, has appointed Kaelan Richards its new Senior Director of Public Policy, Communications & Advocacy, effective March 26, 2012. Richards will report to Dr. Connie Garner, who UCP appointed as Executive Vice President of Public Policy earlier this year.

Richards joins UCP after nearly three years as Communications Director for Congresswoman Rosa L. DeLauro (D-CT).  She has also served as Press Secretary for Senator Paul G. Kirk, Jr. (D-Mass.) and Deputy Press Secretary for the late Senator Edward M. Kennedy (D-Mass). She holds a bachelor’s degree in political science from the University of Miami and is a candidate for a master’s degree in Public Communications from American University.

“I am pleased to welcome Kaelan to UCP as Communications Director for our public policy initiatives,” Garner said. “Her longstanding commitment to communicating the importance of disability issues to legislators and national media is evident in her work with Senator Kennedy and Senator Kirk, and most recently Representative Rosa DeLauro. Kaelan is a welcomed addition to our developing public policy and outreach team at UCP.”

Richards will serve as the lead press and communications coordinator for UCP’s policy efforts, helping to create communications strategies that link UCP’s national programs with key legislative initiatives while mobilizing advocates throughout the nation to advance for the full citizenship for people with disabilities.

“UCP is an innovative and dedicated organization with strong national network of affiliates all working toward the same goal: creating a ‘life without limits’ for people with disabilities and providing the support their families need,” Richards said. “It is an honor to be joining the amazing team at UCP, and I look forward to working with them to advance smart policies that ensure all doors of opportunity are open to Americans with disabilities and their families.”

About United Cerebral Palsy
United Cerebral Palsy (UCP) educates, advocates and provides support services to ensure a life without limits for people with a spectrum of disabilities. Together with nearly 100 affiliates, UCP has a mission to advance the independence, productivity and full citizenship of people with disabilities by supporting more than 176,000 children and adults every day—one person at a time, one family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities—impacting the lives of millions living with disabilities. For more than 60 years, UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society. Together, with parents and caregivers, UCP will continue to push for the social, legal and technological changes that increase accessibility and independence, allowing people with disabilities to dream their own dreams, for the next 60 years, and beyond. For more information, please visit www.ucp.org.

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UCP WHEELS FOR HUMANITY ANNOUNCES MAJOR EXPANSION WITH FIRST AFFILIATE, $1.7 MILLION USAID GRANT

FOR IMMEDIATE RELEASE

CONTACTS:
Lauren Cozzi: 202-973-7114, Alicia Kubert Smith, 202-973-7168,


UCP WHEELS FOR HUMANITY ANNOUNCES MAJOR EXPANSION WITH FIRST AFFILIATE, $1.7 MILLION USAID GRANT

Washington, DC (February 27, 2012) – United Cerebral Palsy (UCP), an international service provider and advocate for children and adults with a spectrum of disabilities, is proud to announce the expansion of The UCP Wheels for Humanity Program with a new affiliation with United Cerebral Palsy of South Florida. UCP is also pleased to announce the UCP Wheels for Humanity has been granted $1.7 million by USAID to expand services and programs in Indonesia; providing more wheelchairs for those in need, “side cars” for motorcycles and long-distance travel for wheelchair users, enrich sports programs for the disabled population, increase advocacy efforts, and partner with the University of Gadjah Mada on a two-year study on the effects of providing wheelchairs and services in Indonesia.

Press releases that follow:

  1. UCP Wheels For Humanity Expands With New South Florida Operation 

  2. UCP Wheels For Humanity (UCP WFH) Receives $1.7 Million From The United States Agency For International Development (USAID) To Expand Its Operations In Indonesia

About United Cerebral Palsy
United Cerebral Palsy (UCP) educates, advocates and provides support services to ensure a life without limits for people with a spectrum of disabilities. Together with nearly 100 affiliates, UCP has a mission to advance the independence, productivity and full citizenship of people with disabilities by supporting more than 176,000 children and adults every day—one person at a time, one family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities—impacting the lives of millions living with disabilities. For more than 60 years, UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society. Together, with parents and caregivers, UCP will continue to push for the social, legal and technological changes that increase accessibility and independence, allowing people with disabilities to dream their own dreams, for the next 60 years, and beyond. For more information, please visit www.ucp.org.

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UCP WHEELS FOR HUMANITY EXPANDS WITH NEW SOUTH FLORIDA OPERATION

Affiliate in Sunshine State to replicate successful LA model

Miami, Fla. (February 1, 2012) – United Cerebral Palsy of South Florida (UCP), a service provider and advocate for children and adults with a spectrum of disabilities, is proud to announce the expansion of The UCP Wheels for Humanity Program with a new affiliation, United Cerebral Palsy of South Florida Wheels for Humanity. Established in 1947, United Cerebral Palsy of South Florida has maintained an active and respected presence in the South Florida community. It started when a group of parents came together to seek help for their children with cerebral palsy. The only available option was to send their children to an institution, which the families did not want to do. The parents founded their own organization and raised funds to provide therapeutic and vocational services for children with special needs.

Today, United Cerebral Palsy of South Florida offers comprehensive services every day throughout the year. Services offered consist of early intervention, integrated preschool, after school care, speech, physical and occupational therapy, adult vocational workshop, supported employment program and residential facilities for children and adults with special needs and other disabilities. From infants to senior citizens, children and adults participate in programs that will help them lead independent and meaningful lives.


Dr. Joseph Aniello, President & Chief Executive Officer of UCP of South Florida, said he is proud to start the international organization UCP South Florida Wheels for Humanity as part of the broader services he and his team provide.

“Too many people with disabilities in the world go without the most basic of resources to lead independent lives,” said Dr. Aniello. “We believe this partnership with UCP Wheels will allow us to expand our efforts to those who need us most, and we’re excited to do all we can to help those in developing nations get the wheelchairs they need.”

UCP Wheels for Humanity (UCP Wheels), which has a distribution center in North Hollywood, California, refurbishes donated wheelchairs and hand fits them for children and adults with disabilities in developing nations. UCP Wheels then partners with international health-care organizations to identify those in greatest need. With a team of volunteer health care professionals, each recipient is individually fitted to the wheelchair that best fits their needs. Since 1996, UCP Wheels has helped more than 50,000 people with disabilities in more than 68 developing nations to gain increased mobility and dignity.

United Cerebral Palsy of South Florida is hoping to replicate this model and to increase this international endeavor.

“We are excited to expand the reach of the UCP Wheels model by partnering with Dr. Aniello and his staff in South Florida,” said Dr. Ronald S. Cohen, Chief Executive Officer of UCP Wheels for Humanity and President and Chief Executive Officer of United Cerebral Palsy of Angeles, Ventura and Santa Barbara Counties (UCP). “UCP of South Florida has a strong record of serving people with disabilities in the Sunshine State. We are excited to see that same level of care expanding to equip even more people in developing nations with wheelchairs, enabling increased independence and mobility.”

Stephen Bennett, President & Chief Executive Officer of UCP, said the expansion of UCP Wheels with the creation of UCP South Florida Wheels for Humanity speaks to the broader mission of UCP. “This is about so much more than wheelchairs; it’s about creating greater independence and a life without limits for people with disabilities. That has been at the heart of UCP since our founding more than 65 years ago. On behalf of the entire affiliate network, we want to congratulate Dr. Cohen and Dr. Aniello for this dynamic partnership and hope that this is just the first of many new UCP Wheels affiliates in our network.”


About United Cerebral Palsy of South Florida
United Cerebral Palsy of South Florida serves over 1,300 children, adults, and families in Miami-Dade, Broward, and Palm Beach & Mid-Coast Counties. From Early Intervention programs to employment skills training, supported employment, education and after school programs, UCP serves individuals with intellectual disabilities on a daily basis. Those served have been diagnosed with Down syndrome, mental retardation, spina bifida, autism prematurity, hearing and speech delay, and other diagnosis. For more information, please visit www.ucpwfhsfl.org.

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UCP WHEELS FOR HUMANITY (UCP WFH) RECEIVES $1.7 MILLION FROM THE UNITED STATES AGENCY FOR INTERNATIONAL DEVELOPMENT (USAID) TO EXPAND ITS OPERATIONS IN INDONESIA

Los Angeles, Calif. (February 21, 2012) – UCP WFH started UCP Wheels for Humanity Indonesia in 2009 with a grant from USAID of $1.6 million. The Indonesian UCP WFH manufacturers children’s wheelchairs and distributes and custom-fits them to poor disabled children in Indonesia.

UCP Wheels for Humanity will receive an additional $1.7 million from USAID to expand its services and programs in Indonesia and provide more wheelchairs for those in need.

 “Before we established UCP Wheels for Humanity Indonesia, the children with severe disabilities could not go to school or play with friends,” says Ronald Cohen, CEO of UCP WFH. “They spent their day laying on a floor. Mobility meant being carried on their mothers’ shoulders. Today, because of the USAID assistance, children now attend school, see eye-to-eye with their siblings, play and just act like a child.”

In addition to manufacturing wheelchairs, the UCP Wheels for Humanity Indonesia team will design and produce a side car for motor-cycles that can transport a wheelchair. As a result of the new funding, the organization will be able to enrich the disabled sports program, the advocacy efforts, and will partner with the University of Gadjah Mada to conduct a two-year study on the effects of providing wheelchairs and services in Indonesia.

“We are very proud of our partnership with UCP Wheels for Humanity”, said Robert Horvath, USAID’s Manager of Special Programs Addressing the Needs of Survivors. “Two years ago their project was the first-of-its-kind in Indonesia. Today, the work being done establishes a model for wheelchair provision and service in developing countries.”

For additional information about UCP Wheels for Humanity receiving $1.7 million grant from USAID to expand operations in Indonesia, please contact Brian Miller at 818.255.0100 ext. 224.


ABOUT UCP Wheels for Humanity (UCP WFH)
UCP WFH provides mobility across the developing world. The organization refurbishes donated wheelchairs and rehabilitation equipment to industry standards in the Los Angeles location, and works with world-class service providers to custom-fit wheelchairs to children and adults with disabilities in developing nations. In the Indonesian location, UCP WFH manufactures pediatric positioning wheelchairs and provides them to the children of Indonesia. Both locations together distribute approximately 7,000 chairs per year. UCP WFH is funded solely through contributions and grants and is a subsidiary of United Cerebral Palsy of Los Angeles, Ventura and Santa Barbara Counties.

ABOUT United Cerebral Palsy of Los Angeles, Ventura and Santa Barbara Counties UCP is one of the largest service providers in California, operating over 41 program sites throughout five counties in Southern California. These programs include adult day programs, individual support services, group homes, independent living apartments, and therapeutic programs for children with autism. UCP provides services to nearly 1,100 children and adults with developmental disabilities daily.

ABOUT the United States Agency for International Development (USAID)

USAID is an independent federal government agency that receives overall foreign policy guidance from the Secretary of State. Their work supports long-term and equitable economic growth and advances U.S. foreign policy objectives by supporting economic growth, agriculture and trade, global health, conflict prevention, humanitarian assistance and democracy.

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VETERAN DISABILITY RIGHTS ADVOCATE TO FORM NEW POLICY SHOP AT UNITED CEREBRAL PALSY

CONTACTS: 
Lauren Cozzi: 202-973-7114, LCozzi@ucp.org
Alicia Kubert Smith, 202-973-7168, akubertsmith@ucp.org
 
VETERAN DISABILITY RIGHTS ADVOCATE TO FORM NEW POLICY SHOP AT UNITED CEREBRAL PALSY
 
Garner joins UCP as Executive Vice President of Policy in late January
 
Washington, DC (February 6, 2012) – United Cerebral Palsy (UCP), an international service provider and advocate for children and adults with a spectrum of disabilities, has appointed Connie Garner its new Executive Vice President for Public Policy. Garner assumes her new role on January 30, 2012.
 
Garner comes to UCP from Foley Hoag, where she served as Policy Director in the Government Strategies Practice Group, and as Executive Director of Advance CLASS, Inc., a position she will continue to hold while assuming her duties at UCP.
 
For 17 years prior to her work at Foley Hoag, Garner was Policy Director, Disability and Special Populations, to the U.S. Senate Committee on Health, Education, Labor and Pensions Committee (HELP), where she served Chairman Harkin, Senator Dodd, and the late Senator Kennedy. In that role, she was the lead Democratic Committee architect for the CLASS Act, the major long-term care legislation that is part of health care reform; enactment of the landmark Mental Health Parity Act 2008; the 2006 and 2009 reauthorizations of the $2 billion Ryan White CARE Act; the Family Opportunity Act of 2006 and the 2005 reauthorization of Individuals with Disabilities Education Act  (IDEA), the Special Education Law; and the 1999 Ticket to Work and Work Incentives Improvement Act.
 
Garner also served in the U.S. Department of Education, as Director of the Federal Interagency Coordinating Council for Children with Disabilities and the Secretary of Education’s principal liaison on all interagency health care matters, including health care reform.
 
“We are thrilled to welcome someone with Connie’s knowledge and experience to create a new policy operation for UCP,” said Stephen Bennett, UCP’s President and Chief Executive Officer. “Connie has been at the center of some of the most important legislative advances for people with disabilities for more than two decades. She brings those experiences plus her sensibility as a nurse and a mother of a child with a disability to UCP as she helps us craft the strongest possible advocacy platform for people with disabilities in the nation.”
 
Garner has been tasked with creating a fresh approach to public policy and advocacy for UCP, one that combines traditional federal-level advocacy with grassroots work at the state level and creating tools for self-advocates to have stronger voices in their own communities. She has been serving as a UCP policy consultant for the past year, helping to create a new strategic plan for UCP’s work in the policy and advocacy arena.”
 
“I have had the privilege of visiting with UCP affiliates across the nation for the past year, listening to the ways that laws, regulations and health care systems are impacting people with disabilities in communities across America,” Garner said. “UCP is unique, with its focus on helping people with disabilities and their families transition through major moments in life. I look forward to working with UCP, its affiliates and its partners to amplify their voices here in Washington and beyond.”
 
Prior to her work with the Federal government, Garner provided clinical nurse specialist services in both urban and rural public health settings as well as inpatient hospital settings, and managed several large maternal-child health inpatient hospital units in both Philadelphia and the Washington, DC area. She continues to work as a practicing nurse on a monthly basis.
 
Garner has a B.S. in Nursing (University of Pennsylvania, 1979) and M.S. in Nursing (George Mason University, 1982), an Ed.S. in Special Education (George Washington University, 2000), and her Doctoral work is in both Health and Education Public Policy (George Washington University, 2001). She is also certified as a Pediatric and Neonatal Nurse Practitioner.
 
About United Cerebral Palsy
United Cerebral Palsy (UCP) educates, advocates and provides support services to ensure a life without limits for people with a spectrum of disabilities. Together with nearly 100 affiliates, UCP has a mission to advance the independence, productivity and full citizenship of people with disabilities by supporting more than 176,000 children and adults every day—one person at a time, one family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities—impacting the lives of millions living with disabilities. For more than 60 years, UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society. Together, with parents and caregivers, UCP will continue to push for the social, legal and technological changes that increase accessibility and independence, allowing people with disabilities to dream their own dreams, for the next 60 years, and beyond. For more information, please visit www.ucp.org.
 
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Tags: 2011